Disabilities Champion Sokny Onn: Leading the Fight for Equality
A version of this article was originally featured by Conscious Company.
When Sokny Onn was two years old, she, like many other Cambodian children in the 1980s, contracted polio. The disease left her unable to stand on her right leg, vulnerable to social stigma, and with the prospect of spending the rest of her life at home, doing only menial tasks.
Today, Onn is the country director of Epic Arts, an organization that supports people with disabilities in Cambodia. Author Menno Moffitt de Block spoke with her at Epic Arts Café, the organization’s social enterprise café in the southern Cambodian town Kampot.
Tell us a bit about how you grew up.
I grew up in a very rural village, two hours from Kampong Cham city. I don’t remember much from before I was seven, but my mom later told me that I got polio when I was two. When I was seven, I first realized that I looked different than the other kids. We were often playing chase, so we had to run a lot. And, you know... I always lost. Then at some point, I became aware that not many kids wanted to be on my team. So I asked why, and they said, “Because you can’t run fast.” I think that’s when I started to know.
You didn’t have a crutch until you were seven. When you played chase with the other kids, how did you do that?
I guess I just crawled. But I never realized it was different from the other kids who were running, until I started to think about why I always lost. Because I’m quite competitive, so I didn’t like that I was losing all the time. But I didn’t think about it in terms of a disability yet, I just realized: my right leg is small and I cannot really stand up, and the way I walk is different. That’s all. It didn’t really affect me until I was 12 or 13.
What happened around that time?
When we had guests at our house, my parents told me to just stay in my room. So that made me think I had to make sure I was not so visible to people. I was always hiding. I got very self-conscious, and I got very upset about how I looked. I didn’t want to go out anymore.
Also, some children didn’t want to play with me, because they believed I was a bad person. Some parents were afraid I would give them my disability. They didn’t know what polio was. You can imagine, in the 1980s, people here didn’t know much about having a disability. The education was very limited.
Did you believe those things as well, at that time?
Yes, I did. My mom always said, “You should pity her, because she did something wrong in her previous life, that’s why she got this disability.” It’s not my mom’s fault, it’s just because a lot of people around her talked like that. So I listened to that, because you learn from your parents and the people around you. I believed what they said, but it made me feel bad, because my disability got in front of all my opportunities, chances to make new friends, to study. It was kind of a grey cloud around me, I couldn’t see clearly.
How did you find out that those things weren’t true?
It took a long time and many steps. People used to think that I would just be a burden for my family. That I wouldn’t be able to get married and have my own family, that I wouldn’t be able to do anything. They said, “Don’t go to school, just stay home, because you won’t be able to go anywhere.” But when I was in grade 7, my parents got divorced and my dad went to live in Phnom Penh. He worked as a teacher himself, and he said, “Only education can help you out.” So, I stayed in Phnom Penh with him, and I finished high school.
I was able to join a vocational training, and when I graduated, I got an offer to work with that organization. Later on, I got the opportunity to open a silk handicrafts shop, together with some other people. With each step I got a bit more confidence, and I started to think: I want to be better, I don’t just want to stay the same.
But the real shift happened when I joined a workshop by Epic Arts. The workshop was about movement, doing what you want to do and not trapping yourself. That really woke me up. From then on, I started to think differently about what my dream is, and how I could get there.
Was that how you came to work with Epic Arts?
That happened two years later. I met the founder, and she offered me a job as an accounting assistant, because I was studying accounting at the time. At Epic Arts, I had a supportive boss for the first time, who saw my potential and my talents. It gave me a door to look at myself and what I really wanted to do. One time my boss said, “You will be a leader at Epic Arts one day.” That made me think, like, wow, I never thought about that before.
It turned out she was right. Before we get to that, I’m curious how you’ve dealt with the mental aspect of overcoming the stories you were told when growing up. Because mental health is such a limited field in Cambodia, but it seems like you’ve processed a lot of that, and you feel sort of okay with it now. How did you do that?
Arts. Sometimes I look back and think, how did I manage to get from there to here? A big part was the dance workshop, that really made me awake. It helped me realize that I had been believing people for more than 20 years, people who told me I couldn’t do this, I couldn’t do that. The workshop was just about lifting my legs or my arms in a different way than I was used to. But for me, it showed me that I can also do what I want to do. It was the first time I realized I didn’t need to listen to those people.
I think creativity and art has helped me a lot to process the self-doubt I had. I joined a theater self-help group and every day, we talked about ourselves and our family and community, and illustrated it through movement and talking and writing. Through that, my story came out a lot. It was like therapy, a lot of healing through arts and storytelling. It helped me a lot to get out that stuff in my head that had built up for so many years. Art really makes it break through.
Thank you for sharing that. It’s not surprising you ended up staying with Epic Arts for so long. What are your objectives now that you’re leading the organization?
I’ve been having a really good experience with Epic Arts, with a very good support network, an environment of freedom. I want to pass that on to other people, because I know how good it feels and how much of a difference it makes. Of course, I’m doing that with Epic Arts, but I also feel this obligation for the future, to women with a disability and people with a disability in general. Because growing up, I had no mentors, I had no models I could look at. That’s why I want to be there for people, to talk to them, to be around if they need me. And I’m also working on the next step, to create a system to advocate better for a more inclusive society.
Do you have any ideas for how to do that in practice?
There are a lot of laws and policies that don’t provide enough support for people who need it, especially people with disabilities. I want to help to provide that access. I can’t do that on my own, but I see myself as someone who connects the grassroots needs with the policy makers. I want to make sure they understand each other, to close that gap and make sure better policies are created, based on people’s needs. I think that’s my thing at the end of the rainbow.